Banner: Life with IPF

Getting help and support

One of the biggest mistakes caregivers make is trying to be responsible for all the caregiving by themselves. You don’t have to do it all alone!

Don’t hesitate to seek the support of family and friends, use community resources when you need them and develop your own support network.1 There are many people out there that can help you through this intense time by offering practical and emotional support.

Many times, family members and friends want to help, but they don't know how. Make it easier for them. Be specific about the kind of help you need. Ask when they can be available and what jobs they think they can do. It may also be helpful to keep a list of possible things and services that have to be done in the near future.

If stress becomes overwhelming and family support is no longer sufficient, be proactive and reach out for professional help and take advantage of social services like in-home nursing care, day centers, health care providers, residential facilities, or other outside assistance programs and services.

Patient guide

Patient guide: Caring for your loved one

Backgrounder

Backgrounder: Family & Caregivers

Where can I find help if someone close
to me is diagnosed with IPF?

Expert video: Where can I find help if someone close to me is diagnosed with IPF?

References

  1. Belkin A., et al. A qualitative study of informal caregivers’ perspectives on the effects of idiopathic pulmonary fibrosis. BMJ Open Respir Res 2014;1:e000007.

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