Banner: Life with IPF

Caring for a person with IPF

IPF is a progressive disease that gets worse over time. As with other chronic diseases, the effects of IPF extend beyond the patient and also affect those closest to the patient, such as spouses, family members and friends.1,2

If someone you love has IPF, it can be incredibly difficult to accept such a serious diagnosis and to watch your loved one suffer from the disease.1 Patients and caregivers often begin the IPF journey with little understanding about the disease and the impact it will have on their lives – both physically and emotionally.3 It helps to inform yourself as much as you can about IPF. The more you know, the better prepared you will be for the journey ahead.

If you are caring for someone with IPF, you will face many challenges and may have questions you’ve never thought about before.1 Caring for a loved one is often associated with a rollercoaster of emotions, which can be exhausting, both physically and mentally.1 Acknowledge these feelings – both positive and negative, they are a normal part of the process of accepting the diagnosis.

Family & Caregivers

Backgrounder: Family & Caregivers

References

  1. Belkin A., et al. A qualitative study of informal caregivers’ perspectives on the effects of idiopathic pulmonary fibrosis. BMJ Open Respir Res 2014;1:e000007.
  2. Swigris JJ., et al. Patients’ perspectives on how idiopathic pulmonary fibrosis affects the quality of their lives. Health Qual Life Outcomes 2005;3:61.
  3. Swigris J., et al. EXPLORE IPF: A Survey Evaluating Patient and Caregiver Perspectives in Idiopathic Pulmonary Fibrosis. Suppl CHEST Physician 2015. Available at: http://www.chestphysician.org/fileadmin/content_pdf/chest/CHPH_Explore_IPF_4_14_2015_FINAL.pdf.

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